Even though he spent this summer touring with Slipknot and Marilyn Manson, Of Mice & Men frontman Austin Carlile has been living with a rare fibrostic connective tissue disorder called Marafan syndrome. This disorder has been a constant, forcing him to cancel shows in the past. And while he’s taken time off from touring, rest and a handful of surgeries isn’t help him get better under his condition. It seems his disorder is taking full control of his body and he cannot head back on the road – including the recent canceled Australian tour with A Day To Remember.
It is no surprise that this news aggravated quite a few impatient fans as it led Carlile to speak up further about his sickness. Many fans perceive artists as invincible forces where they could perform with a broken leg, neck or even a rare muscle disease. However, Carlile’s is currently unrepairable. You can view a few of his tweets below as he reveals more about his personal suffering.
For our Australian fans: My heart breaks I can't be there because of my body x https://t.co/eNOFwTmo1M
— Austin Carlile (@austincarlile) November 27, 2016
@violentdrug and btw I'm NOT "privileged" I'm dying from a fibrostic connective tissue disorder that takes away what I get to do which I
— Austin Carlile (@austincarlile) November 28, 2016
@violentdrug marfans syndrome. it is rare. it is PAINFUL. & it takes lives & I fight it every day & I'm PROUD of who I am. Not privileged.
— Austin Carlile (@austincarlile) November 28, 2016
FYI you don't "get better" w/ Marfans. You GET BY. I've had foot, ear, rib, head, hip, back, & heart surgeries just so I can function/live.
— Austin Carlile (@austincarlile) November 29, 2016
all of you saying I should hurry up & get better what's taking so long. I'll never be better. you happy? I live EACH DAY as it comes. each
— Austin Carlile (@austincarlile) November 29, 2016
CHEERS to all my OG fans/family. THANK YOU for the continued support, I'm sorry if I can't reply all the time, but know you're on my mind ❤ pic.twitter.com/QCKYg6o0Eg
— Austin Carlile (@austincarlile) November 29, 2016
day is a battle. Marfan Syndrome is a fibrostic connective tissue disorder, that means it affects your ENTIRE BODY, and IT. IS. PAINFUL.
— Austin Carlile (@austincarlile) November 29, 2016
understand. & I wouldn't wish it upon anyone. This is why I have such a heart for those hurting, mentally OR physically, because I. AM. TOO.
— Austin Carlile (@austincarlile) November 29, 2016
